Parenting · Special Needs

Caring for a medically fragile child in Ireland: An open letter to the Irish Government

Since the budget on Tuesday I’ve been trying to gather my thoughts on the €5 increase in Carer’s Allowance, but this post from Transitioning Angels says it way better than I could

Transitioning Angels

Ignored. Forgotten. Conveniently overlooked. Set aside. Dismissed. Considered unimportant. Call it what you will, families with children who are disabled and/or have life-limiting conditions were, for the most part, ignored in the 2017 Budget announced here in Ireland on 11 October 2016.

There was a crumb given after parents had to fight tooth and nail – that of medical cards to children who currently receive DCA (Domiciliary Care Allowance) payments – and for those families it does indeed come as a welcomed relief. Having said that, it was something that should have been done from the very start, so for it to finally be done now is a bit anti-climatic. It is still only a nugget given to try and satisfy a famine-like situation.

Families with severely disabled, medically fragile children are struggling financially.

We have many expenses beyond that of the typical family, yet in most cases one of the parents (that is…

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