Going public with this story..

I have the privilege to be able to call this amazing mum one of my dearest friends. I know how highly she values her privacy. I know it had been unspeakably hard for her to have to go public about her daughter’s illness. Unfortunately parents whose children are very ill or who have special needs are all too often expected to lay their family’s private intimate business out for all to see in order to get the services that should be theirs by right. I am so proud of my friend and so heartsick for her and most especially for her beautiful daughter. This situation has to change. People with cancer should automatically get a medical card. End of.

Lucy fights Cancer 2014-

Anyone who knows me well, knows I am actually a very private person😞
But in this situation, I felt I had no choice but to go public with Lucy’s story!
I know it has been very difficult for family and friends to see Lucy’s photo everywhere and to hear me speak about such private details on the radio!
But I had to do it, I was raised in a household where you worked and paid tax, I would think I am raising my own children with the same attitude
Sadly the one time I have approached the state for support, it has been declined 😞

The HSE issued a statement yesterday, which said “we don’t comment on individual cases…. But they were over the means ”

1. They should not have released that information publicly
2. Of course we were over the means back then, we were both working!
3…

View original post 205 more words

Advertisements

About museandchat

Busy woman, 45, feminist, married, one daughter, wannabe PhD, discovering new sides to myself all the time! Proud mum of a daughter with Dandy Walker Syndrome, community activist, passionate about history, love to read, write, cook, garden and craft.

Posted on January 17, 2015, in Uncategorized. Bookmark the permalink. Leave a comment.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

oftencalledcathy

My life and adventures with my severely disabled adult daughter

History Repeating

the UK Family History and Genealogy blog

Posse.

Words by Auckland based community activist, Chloe King. She isn't sorry about all the swears.

Joanne Begiato Muses on History

Talking through my research

medievalgill

a blog about medieval stuff with moderns bits thrown in for good measure

CUPID OR CATS

Almost an award winning blog

Fiona Dillon Writes

Living the good life at Hunters Lodge

Johnny Fallon

Irish Political Commentator

Irish Elections: Geography, Facts and Analyses

Elections in the Republic of Ireland (and occasionally other elections!) from a geographical perspective: maps, election boundaries, party vote patterns, turnout levels

Mama.ie

Adventures in Parenting

Bumbles of Rice

Family, Food and Travel Blog

Learner Mama

Because Mother Nature didn't leave a manual

The butchers Counter's Blog

The meandering thoughts of a craft butcher

Bealtaine Cottage ~ Home of Goddess Permaculture and Earth Healing

Colette O'Neill, Innovator of Goddess Permaculture ~Plantswoman ~ Teacher ~ Writer and Photographer

raisinghopespecialneedsparenting

The young single mum and the special child

Welcome to Cork Feminista

A feminist collective in the people's republic

%d bloggers like this: