Special Needs

The joy of Christmas

Christmas is a joyous time for many of us, whether Christian or no.  Personally I love it, I dipped out of it for a while in my late teens/20’s, but since I have had a home of my own and gotten more into baking, homemaking and all making nice and all that goes along with it, I have come to love Christmas more and more.  When we decided to have a baby, one of the many things I was excitedly looking forward to was having an even more excited little person to share it with.  I had images of my child/ren helping to make the Christmas puddings, squabbling over who would open the next window on the Advent calendar, being too excited to sleep on Christmas Eve…… you get the general idea.

But the reality has turned out somewhat different.  I’ve written here before about Fionnuala’s disabilities and I’m not going to go over them again.  Suffice it to say that my amazing daughter is now nearly 4½ and she has no concept of Christmas.  Or birthdays.  Or any of the other special occasions we mark in our house.  So when well-meaning people ask her “Is Santy coming?” I just smile and make some insipid comment like “Only if she’s good!” or “Oh definitely, isn’t he Fionnuala.”  The child has not the foggiest idea what we are on about.  We are putting up our Christmas tree and decorations tonight and while she will know something is going on, she won’t understand.

At her first Christmas she was 5½ months old, so naturally I didn’t expect too much engagement with the whole idea.  We dressed her in a cute little Christmas pudding babygro and oohed and aahed over her as all parents do at their child’s first Christmas.  The following year she ‘helped’ her daddy put the fairy on top of the tree and I have a lovely photo of her smiling as she reached out to it. But despite knowing and understanding the level of our girlie’s disabilities, part of me still hoped that she might show some comprehension of what Christmas is all about.

At her third Christmas, I found it hard that children younger than her were beginning to get the idea that something special was happening.  Last year was her fourth Christmas and I ended up with a rotten dose which meant I spent most of the Christmas break on the sofa so I wasn’t really worrying about her lack of awareness.

So now we are approaching Christmas number five for Fionnuala.  She is attending a local pre-school two mornings a week and a special needs unit two half-days per week.  She loves both and has settled in really well.  But now of course there are Santa visits and Christmas parties….. and she still doesn’t understand.  This year we’ve begun to read stories about Santa and Christmas at home with the view to making the words familiar.  We have an Advent calendar but I’m the one who opens it every day.   The Christmas cake is made (eventually) and the puddings will be mixed tonight – and she will take her turn stirring the mix (with some help from Mum and Dad) and while she doesn’t close her eyes and make a wish, I make an extra one for her when I’m stirring the puddings.

And funnily enough I don’t feel as sad about her not getting Christmas yet as I have done in previous years.  Yes of course I still wish that she could come running into us on Christmas morning with her stocking in hand, and I wish that she was able to write a letter to Santa.  I wish that she could say “Merry Christmas Mummy!” and open her presents herself.  But – as yet – she can’t do any of those things.  And even writing that down I still don’t feel as sad as before.  I’m not exactly jumping for joy mind you, but I’m wondering if its that I have become more accepting of the need to be patient with Fionnuala’s development (and patience is not one of my natural virtues), or if that she is doing so well and is such a happy little girl that I don’t mind the whole Christmas thing so much.

Or is it that I have finally come to understand the message of Christmas (at least the message the movies portray) – be glad and happy with what you have, celebrate the joy, the love and the good things in your life, and while there’s nothing wrong with wishing, don’t let the wishfulness become wistfulness.  Maybe that’s my darling girl’s Christmas present to me – acceptance and patience mixed in with a huge helping of joy.

Merry Christmas to anyone reading this, I hope you and all those you love have a peaceful and joyous time.

3 thoughts on “The joy of Christmas

  1. Beautiful and eloquent blog, I think sometimes its our children’s job to make us realise that no matter how long it takes they will get there in their own time and when they do its a small miracle, many people take it for granted but not a parent of a child with Special Needs. I will always believe that a miracle happened on Christmas day two years ago, I was beginning to lose hope that my son was ever going to speak let alone understand what Christmas was all about, he came downstairs and saw all the presents under the tree and was so excited he ran at me and knocked me over onto the sofa and exclaimed ‘Mammy I love you’ for the rest of that day I cried happy tears. Fionnuala will get there too xx Happy Christmas to you all

  2. This is a beautiful post. I have read it just minutes after reading a lovely price about how amazing mothers of children with special needs are, you have just shown it in this tribute to Fionnuala. Maybe internally she recognises this special time and I’m sure even if she doesn’t know Santa is on his way, she will be thrilled come Christmas morning!!
    Happy Christmas Beautiful Fionnuala and Happy Christmas to you too, Tracey xxx

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